To The
"Mothers Of Omphaloceles"
Support Group and Webring
Hi
my name is Robin, I made my pages, Omphalocele.com and
MOOs Webring to connect and share with everyone that knows anyone
born with an Omphalocele.
Together
I believe we can all give answers and support
to all who need it :)
My
Heart is with all of you :)
Thanks,
~Robin Ramey<3
^i^ For Our Angels ^i^
Email: OmphaloceleMom@aol.com
An
Omphalocele is a midline defect in which bowel, liver, and
possibly other organs form outside of the abdomen in a sac due to
a defect in the muscle of the abdominal wall. Gastroschisis is a
similar birth defect, but the sac is not present.
We are a
group of Mothers, Fathers,
Grandparents, Families, and Friends
trying to get information out
about the birth defect called an
"Omphalocele"
Here you
will find Links to other sites about related
topics and (FAQ) frequently asked questions
and their answers. We have included a list of Questions you may
want to Ask Your Physician.
Our Stories have been posted by people just
like you and are here so you know you aren't alone. On our Webring
you will find sites made by others about their "O"
children. You can have your Site added by clicking on the Webring
button to the left. We have also included some Definitions
of terms that you may encounter during your "O"
experience. But most importantly we have a support group EmailMoos that we invite you to join.
Here you will meet people in all stages of the "O"
experience including adults who were born with an Omphalocele.
When you join our support group you will see many miracles and
come to know how strong, brave and delightful "O"
babies are.
See you there!
The MOOs
Please Support the BWS Foundation by purchasing their Cookbook:)
Website:
From Our Family To Yours
--------------------------------------------------------------------------------
Organization: Beckwith-wiedemann Childrens Foundation
You can click on purchase a cookbook for more info about the
cookbook
Please email Lindzsmom02@aol.com for shipping costs, as they vary depending on what country you live and the quantity of books.
Description: 281 recipes from around the world, donated by friends and family of children affected by Beckwith-wiedemann Syndrome.
Funds
raised support: Children affected by Beckwith-wiedemann Syndrome
How to Purchase
--------------------------------------------------------------------------------
Make check payable to:
Bwcf
Mail
order to:
Beckwith-wiedemann Childrens Founda
Att: Kathy Kruger
433 Court St.
New Bedford, MA 02740
E-mail
Cost:
$15.00
Favorite Recipe
--------------------------------------------------------------------------------
Jane's Minty Cookies
By: Jane Barros
2 c
flour
1 tsp baking powder
1 tsp baking soda
2 sticks margerine
1/2 c sugar
3/4 c brown sugar
2 tsp vanilla
1 (6oz) bag of Andes candys, chopped
Mix all
ingredients together well and bake at 350° for 7-8 minutes.
You are visitor
Since Feb.1,2001
I have permission to use these graphics from countryclipart.com. If you like these graphics and would like to see more please visit Lisa at :
Original Country Clipart By Lisa
http://www.countryclipart.com
Thanks Lisa <3
|
This site is
maintained by Robin Ramey with no financial support from any
public, nonprofit, or pharmaceutical source. The diagnosis and
treatment of Omphalocele and any other medical disorder requires
trained medical professionals. The information provided here is
to be used for educational and supportive purposes only. It
should not be used as a substitute for seeking professional care
for the diagnosis and treatment of Omphalocele or any other
disorder.